The last 36 hours have been emotional to say the least, but Skye is in good spirits, which makes it even harder for us to acknowledge the real issue. I have had a long chat to Greg and AVO this morning. I have shed lots of tears. Good to get them out of the way so that I can be positive when I get back to Skye. He has been keeping everyone entertained in his usual manner.
Things moved pretty quickly yesterday because I have a wonderfully forceful wife! Yet another GP visit where she forced a paediatric consultation. Following a CT scan last night and an MRI this morning, it has been confirmed that he has a significant tumour sitting between the cerebellum and the brain stem. Unfortunately there are cells, which have migrated down the spinal cord, which make treatment more complex. We are planning for surgery on Monday 2 September to remove the bulk of the tumour followed by further treatment depending on the type of cells they find.
The last 24 hours have been surreal to say the least. Skye has been firm on the fact that he is starting school next week and has been telling the nurses as much. He is in great spirits which makes it even harder for Sally and I to accept that this is in fact real and not some horrible nightmare. Skye has been admitted and will remain here until he is well enough to go home. He is otherwise really well and happy. What a shock for us for a boy who is otherwise bouncy. It is going to be a long process, but he and we are strong.
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All is good apart from our 4 year old son. He has been vomiting regularly once a day for the past 4 weeks. Last 3 days this has progressed to 3 times a day. The GP has had him on antacid for reflux, (been back to GP 3 times now), but no effect. He is fine within himself, but naturally we are concerned. Growing well in terms of height over the last 3 months but not getting much nutrition over the past few weeks and is losing weight, now down from 50th to 25th percentile. Trying to feed him what he feels like eating. Mostly vomiting occurs in the morning. No anxiety issues for him, happy within himself but understandably lethargic and not really his bouncy self.
We have been given a paediatrician consultation in about 2 weeks, which is frustrating that it is not sooner. GP has been on holiday and we have had to swap GPs. He has had blood tests, urine and faeces. but nothing showing up. We have thought about ketotic hypoglycemia, so done a couple of late evening and early morning snacks to see if it makes a difference, with no effect, and we are now becoming increasingly concerned for his welfare.
What are your thoughts on stomach ulcers, brain tumours (headaches on occasions - today just before he vomited), hypoglycemia, allergies, diseases picked up in SA, Australia, NZ, or Hong Kong between Jan and March, excessive post -nasal drainage causing build up of phlegm in the stomach, celiac allergies (have tested but nothing showed up). So sorry to burden you with questions - two concerned parents, starting to worry!
