SHOCKING TRUTH - There is NO formal data collection, monitoring and sharing of side effects for Standard Treatment Guidelines (such as the Milan Protocol) used for many children suffering with cancer. How can we LEARN if we don't SHARE??
Nicola Blackwood MP arranged a meeting between us and Secretary of State for Health, Jeremy Hunt at the Oxford University Hospitals Trust today. He asked probing questions about the Milan Protocol and National Database for monitoring Standard Treatment Guidelines to Senior Management team at OUHT and said he would look into the matter personally.
Please listen to this short interview on BBC Radio Oxford at the very least out of respect for the person who all this has affected more than anyone else and who is not here today to be heard.