End of Chemo Phase 1 - MRI Scan

Today sees a milestone in Skye's current treatment. We have completed the first cycle of chemotherapy, which saw 4 treatments using 5 different drugs over an 11 week period. We are at the hospital yet again, this time to have an MRI scan to assess the progress of his disease. There are 4 possible outcomes to today's scan, the results of which could take up to a week to come through. In an ideal world they will find Complete Remission (CR), which will lead us onto maintenance chemotherapy starting on 3 February 2014, consisting of 6 x 9 week cycles through to February 2015. The other possibilities are Partial Remission (PR), Stable Disease (SD) or Progressive Disease (PD), each of which will lead us to High Dose Chemotherapy starting 3 February, and consists of 2 x 6 week cycles. It is clearly an anxious time for us, but there is a great deal going on to distract us, including a 2 year old who woke up at midnight saying, "Daddy, I'm lost". He was awake for the next three hours! Bless him. Skye was next, at 2.30am and regaled his dreams to Sally in great detail over the next 3 hours. A great night's sleep for all of us. We had to get up at 5.30am to be at the hospital for 7.30. Regardless of the outcome of the MRI, we move to London on 1st of December to start his Radiotherapy treatment, twice daily, 5 days a week, for 5 weeks. We have 'bigged' up London, by visiting Hamleys last week when he went for his preparatory CT scan at UCLH, as well as enticing him with bowling, London Eye, biggest Christmas tree in the country etc. He continues to be an absolute hero, getting braver with taking his GCSF injections (we do feel for the nurses), and making us laugh on a regular basis with his antics. His twice weekly home schooling sessions are going well and he is making a determined effort to walk on a daily basis. Thank you for all your continued thoughts, messages and prayers.