Sadly, our dear boy Skye died peacefully at home on Friday 29th August 2014
Thank you to everyone for their tributes to Skye, their generous donations, the thousands of loom bands, and messages of love.
Now his little brother Jesse needs your help, so please keep on looming for Skye!
Photons (Radiotherapy) vs Protons - Lots of Misconceptions
Protons offer no better cure than Photons (traditional radiotherapy). It is internationally agreed among the consultants that treating quickly is key. The potential long term side-effect benefit of protons are for hormonal and gut issues later on in life, and whilst significant, are only useful if you are alive! Losing our son Skye to a high risk Medulloblastoma, was certainly not because he stayed in the UK for radiotherapy, as opposed to receiving protons abroad. The key problem is a lack of funding to find better ways of treating at a biological level. Our charity, Blue Skye Thinking, has been set up to aid key research, which supports the internationally regarded Northern Institute of Cancer Research on ground breaking projects which strive to offer a better chance of survival and a better quality of life post treatment.
This is not a problem unique to the NHS, who have fully supported us, but this is a world wide problem for all institutions trying to tackle notoriously aggressive tumours. Our experience has shown the NHS to have a wealth of expert and dedicated professionals who go above and beyond their duty of care to treat those entrusted to their care. The debate about Protons vs Radiotherapy is hugely detracting from the main issues where the treatment protocols as a whole need addressing.
If you feel you want to help children like Ashya King and Skye (who died two weeks ago) then please donate and visit Skye's facebook page at www.facebook.com/loomtothemoon.
Our heart goes out to Ashya for the long and arduous journey, which lies ahead.
Listen to Malcolm Boyden's tribute to Skye
on BBC Radio Oxford
Help others like Skye to live their lives by supporting
research & treatment of childhood brain tumours
Skye was diagnosed with a brain tumour on 27 August 2013 and those close to him were constantly in awe of his strength of character and fortitude in fighting a horrible disease. Cancer is so often thought of as an adult disease. Our experience has taught us otherwise.
Brain tumours present a life changing experience. In children they are very rare, and unfortunately the prognosis is not very good. Current treatment involves Surgery, plus a combination of Chemotherapy and Radiotherapy, but each of these have devastating consequences in terms of side effects, both in the short term and over the long term. Research is trying to establish new innovative ways to treat childhood brain tumours, but this requires funding.
Blue Skye Thinking is a Charity which supports research so that all children diagnosed with brain tumours will have a better chance of survival and a better quality of life post-treatment. The Charity is run by volunteers and all money donated goes directly to the forefront of Research and Treatment.